Disorder: The Rare Disease Film Festival
Disorder: The Rare Disease Film Festival will be held October 2 & 3, 2017 in Boston, MA. This is a new event…
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Articles, insights, and posts about Child Development, early detection, and new methods in diagnosis and treatment.
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Izzy’s Journey with 22q and CHD
Continue readingFDNA focused on congenital heart defect syndromes, aortopathies and other inherited heart conditions in July for the Year of Discovery. We are uniting…
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Spotlight on Inherited Heart Conditions for the Year of Discovery
Continue readingFDNA highlights inherited heart conditions in July for the Year of Discovery. We are uniting healthcare, advocacy and technology for rare…
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Emma and Naomi’s Journeys with Bardet Biedl Syndrome
Continue readingSpecial thanks to Kathy Eby for sharing her daughters’ journeys and for co-authoring this post. Read her article on “Why…
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Facial Analysis Discoveries for Sanfilippo Syndrome B (MPS IIIB)
Continue readingIn May, FDNA reached out to clinicians and patients globally as part of the Year of Discovery to collect and…
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Miriam’s Journey with MPS IIIB
Continue readingFDNA highlighted metabolic disorders and LSDs during May for the Year of Discovery. We are uniting healthcare, advocacy and technology…
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Age-specific Facial Analysis Discoveries for Overgrowth Syndromes in the Year of Discovery
Continue readingIn April 2017, FDNA analyzed patient data from syndromes categorized as Overgrowth Syndromes as part of the Year of Discovery,…
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Romana’s Journey with Sotos Syndrome
Continue readingThis month in the Year of Discovery, FDNA spotlights overgrowth syndromes. Every case uploaded in April will be matched with…
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New Facial Analysis Discoveries for RASopathy Syndromes in the Year of Discovery
Continue readingIn March, FDNA reached out to clinicians and patients globally as part of the Year of Discovery to collect and…
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